Wednesday, February 11, 2015

Wait, what????

So........ Remember last time I blogged I said I was ready for what the year had for me?  Can I take that back???!! It's mid February and it appears this year is really gonna blow. Chunks. For realses. 
Not that I dismiss or am ungrateful for all of the good that is in my life. And there's plenty of good. I need only gaze upon my children and I know I'm incredibly blessed. So don't get me wrong, things could always be worse and I always try to see the good in any situation. But my situation? Sucks donkey dick. Yes I did just say that. 
In a sad turn of events, Nana died in January. She was just shy of 94 years old. Days shy actually. So it wasn't out of the blue as she lived a long wonderful life, but it was sad and it kind of feels like the end of a Harry Potter, where Hermoine says "everything is going to change now, isn't it?"  Because she was the matriarch of the family. Tats had died a few years back and now Nana is gone. :(
So we had to go out of the state for the funeral. And as it all started coming together it was clear that I was going to have to not run a half marathon that I register for almost a year in advance. The rock and roll half marathon. I had trained for it and was ready to run it. Would be my 4th half marathon. But couldn't do it because of the timing of the funeral. That was hard for me. It shouldn't have been. But it was. But I knew what I had to do so I accepted that I trained for a race, paid for it and I would not be able to run. This has happened to me once before. When my car was totaled 3 days before a marathon I was supposed to run. Wtf‽ seems I'm out of another race. Fine. It is what it is. So I research and decide there's another half marathon I can register for in March. So off to the funeral we go....
Wait, no. AJ comes down with the flu days before we are to go. Put him on tamiflu (HOLY CRAP $160 for the prescription!!!! That's with insurance!!) and quarantine him and hope nobody else gets it! 
Aaaand then Ashlynn and Amylia get it. Good god can we catch a break???? Thursday comes, we are supposed to drive to Cali... I get the flu! I try to refuse to admit it because clearly this will go away if I deny it, right? RIGHT‽ Joe says we should just go tomorrow and let me sleep but I refuse, because I can't imagine the kids riding in the car all day and going straight to a funeral. So let's just go. We can rest at the hotel and be ready tomorrow (had masks for all in case we weren't better cuz I don't wanna get anyone sick!). We load up the car and I'm in the car when I realize I need to barf. NOW! I hop out and in my driveway let loose. When I'm finished, teary eyed and deflated I look at joe and say he's right and I'm going to bed.  The kids were already buckled even. Lol!
Ok Friday. I wake up all better (NO SHIT!) so we go to Cali. Check in at the hotel (lost the money for the night before as we had reservations but whatever.) It had felt like the fates were trying to keep me from going to the funeral and dammit I got there. Whew! Oh shit, in my flu ridden packing frenzy I forgot shirts for me! Seriously‽ so now we gotta hurry, have Ash get the littles showered while Joe and I go to a store for the things I forgot! Hurry hurry!!!!!
If you've gotten this far, I've saved the best (smh) for last....
We get back to the hotel and I'm gonna shower before Joe. The floor is SOAKED! Good god my littles are messy. Hop in to realize I need a washcloth... Slowly and carefully go to step out and it happens. I fall. When I do something, if u don't know me u don't know this, I really DO it. I knew it was bad as I have a high pain threshold and I couldn't stop sobbing and screaming in pain. I can't get up. My leg feels like something I've never felt before..... 
I couldn't walk but was not going to miss Nanas funeral. Went to the viewing and rosary that night, funeral next day and then drove home. The pain was unbearable. But I pushed through. And now I have a cute cane with roses all over it and a snazzy knee brace. Oh and an MRI later I'm told it will take me a year to heal. At least. Oh I'll need surgery. I completely tore my ACL, partially tore my MCL, and tore my meniscus. Go big or go home baby!  Running? Out. Standing or walking or ANYTHING? Out. So now I am thrust into a world of constant pain, no sleep and seriously depressed. God damn I'm so not graceful....
So how is your year going? :)

Wednesday, December 31, 2014

Another New Year....

Are you ready for what your future holds? I am....

Sunday, August 17, 2014

Unconditional love... It's hard

How do you love someone that pushes you away at every turn? 

When it's just anyone, even a spouse, I think at some point you cut your losses and close a door. But when it's your son? You love harder. And how hard that can be at times....
This week has been an especially trying week. School started, and I knew his anxiety would be high. It had been hard a week or two prior when his dad was out of town for work. And my sweet little aspie doesn't hold it together so well when he's feeling that pressure. The week his dad was gone was rough. He took it out on me and was angry, as though it was my fault. I expected that and did what I could to assure him things would be back to normal soon. But the back to school stuff? I didn't think it would be so hard. And I had hoped that with the meds he's on now, he would handle it better. It left me an emotional wreck after he did his best to express his anger and hatred for me. 
It's exceptionally hard for me  because my childhood wasn't the happiest. It was filled with verbal abuse and I actually did fear for my safety. I was well behaved because I didn't think, I *knew* I would get the shit beat out of me if I pissed her off. I did my best to stay under the radar and I did a damned good job of it. So to become a parent myself, I made sure not to follow in the footsteps I had been forced to follow as a child. I have raised my children with love and security. I want them to know beyond a shadow of a doubt that they have my love and support, no matter what. And they do, I believe. I think I am a very involved mother and love my children unconditionally. 
But then I have this sweet AJ. I think he truly believes he has a rough life. I don't think its a kid being dramatic. I can see it in his eyes. He truly thinks I am mean and horrible and his life is terrible. And it tears my heart out. His feelings, irrational as they are, are real. And how do I teach him that his life? It's not bad. That his mom? Isn't a bad one at all? When he treats me like he does (yes I'll tell you about that in a minute), there's different reactions in my head. The human in me wants to say "you think I'm mean‽ I'll SHOW you mean!!"(but that isn't in me, so I would and could never). The girl who avoided confrontation and anger wants to run away and hide (but I'm also a mom to two other children who need me and would suffer in my absence, so the urge to withdraw isn't as strong as my will to be the mom I know I am). But really, what the hell am I supposed to do when I'm shit on again and again? 
His meltdowns have dramatically gone down to virtually none since he started on meds for his anxiety, but now he handles it in a more calculated way. And this scares me. I'm very concerned that his anger and what feels like true hatred for me will manifest into god knows what as he gets older. What will his actions manifest into?
I get that his ODD (oppositional defiance disorder) affects how he treats me. And that he treats me the worst. I get that if he considers someone an expert he respects them. And this is why, even when he's angry with his father, he does what he's told and is respectful to him. He's a teacher. Therefore he's an expert. But me? I clearly know nothing. He won't believe things I say unless he runs it by his dad. Wtf? It's getting old but I deal with it and his dad backs me up. But this past week, he has told me he wishes his dad had met another woman and that I had never been his mom. He's not just saying words. He means it. He has told me he hates me. I'm mean. (Again, not in the way an NT kid might say it as they grow up, I can see in the look on his face that he's not trying to hurt me, he's being real and blunt and true to how he feels, and this is why it is so upsetting!). He set up booby traps in his room when he went to bed with a note that was hanging from it. "I hate you mom". Ouch. That hurt.  Bad. 

So that was my week. How was yours?

Wednesday, May 28, 2014

Pull up a chair

Well, hello again. Nice of you to joIn me here, pull up a chair and stay For awhile? Glad u stopped by, I've Missed yoU hard, like seriously yo. Its nIce to See That you have popped In, gives me some sense of faLse hope that in this big old worLd maybe just maybe I'm special? Nah prolly just curiosity but hey I'll take whatever attention I can get right?  Don't worry, I won't telL anyOne you're here, secret is safe with me B)   Anyways I'm always right here., eVEn when I'm quiet, I'm here. Just for shits and giggles feel free to say hi. I know u won't, who am I kidding? I know, I know, you gotta go. And who knows if yoU will come back? I can always hope, right? There always a chair right here....

Sunday, May 18, 2014

Stumbling around lost

That's the best way I can describe this past, what, almost year? I'm just lost. That's all I can say. I'm searching for my answer...... Never to find it methinks.
Or maybe that's how it's always supposed to be for me?  Always getting close enough and then the rug gets pulled from under me? Anyways just ignore my babbling. I can't turn off or stop how I feel. IFMU. I can try to ignore that I'm stumbling around, but stumble I do.  They say time heals all wounds, I don't think I believe that. Because every day that passes?  The pain doesn't let up. Not for even a day.  *just keep swimming*......

Sunday, November 24, 2013

It's official


My son is autistic. Official diagnosis: Autism Spectrum Disorder, ASD.






I've suspected as much since he was a baby, but only left it at the thought in the back of my mind. Always there. Always nagging at me. Sure I asked the pediatrician a few times but was always told things like "it sounds like he needs a snack, when blood sugar level drops children can have difficulty dealing with things and can throw fits". But the fits he has always thrown are unlike any I've witnessed from other children. His anxiety and distress is severe and there is no off switch. No carrot to dangle, no punishment to threaten will prevent a meltdown. Once triggered, a meltdown can go for hours and will only stop when he's ready. The parroting, the tics to soothe himself, so many behaviors that are not seen in a neurotypical child have always been there. As the days, months, and years have passed, they are always there. He's going to be 8 in just over a week, and over the years I had hoped, knowing it wasn't going to happen but hoping nonetheless, that he would "outgrow" the things that make that voice scream at me that there is something wrong.
So I turned to the internet. To my friends on twitter. To anywhere I could find some information and it became apparent that AJ had all the characteristics of Aspergers. A few twitter friends with experience in ASD encouraged me to get him assessed. They helped me to realize that his behaviors were because of the ASD. First I went to my insurance website and found a child psychiatrist who specialized in ASD. That was a waste. The guy did no assessment. He dropped a file and asked AJ for it, when he picked it up as directed the Dr said "thank you", and because AJ has learned good manners and said quietly "you're welcome" the Dr surmised that AJ has ADHD and not ASD. Wait, what‽ So according to this guy, spending 30 seconds with my son is long enough to diagnose anything‽ Um, no. But I did feel defeated. As though I had nowhere else to turn. But again my friends encouraged me to not give up. So I didn't. I remembered a patient at work whose mother works in the schools with autistic kids to be sure they are getting the assistance they deserve. I talked to her and she gave me the name of the Dr who would help us. AJ was finally given a proper assessment as well as being observed at school by this Dr, who gave us the diagnosis.
The funny thing? My emotional reaction to it. If the report came back saying he wasn't on the spectrum, I know I would have said "BULLSHIT!" But to see it in writing? The diagnosis that I have always really known? It was still hard to swallow. It changes nothing in terms of how I feel about my son. And I wouldn't change him for the world. I know him. I know he is a loving, caring boy. Others may see him as unfeeling, unempathetic, and even spoiled. But I know him and couldn't love him any more.
                                              
 
 
So now I feel a bit overwhelmed. There's a lot to take in. To learn. To do. But at least now we have something to go on. The ball is rolling and now we have a chance to help him grow up and get him the help he needs to be successful in school. We have answers as to why he does the things he does. I'm more understanding when a meltdown happens and there's less yelling (from me) as it won't help and doesn't make anybody feel better.
He knows he is different. He confided in me that the kids at school think he is "weird". I haven't told him anything about ASD or that he has it. I am hoping to get guidance from a support group as to how and when to teach him about it. I'm not embarrassed about it and he shouldn't be either, so when the time is right and I know how to, I will explain it to him.

 

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